After much thought, I’ve decided to take the plunge and start a blog. My loved ones have been telling me to start one for years. So, about my and my domain name. My name is Whitney. I have 11 chronic conditions. Hence the name. One of which is Cervical Dystonia. Dystonia is a movement disorder where my brain can’t tell my body to stop spamming. My neck and shoulders spasm constantly when I’m awake and stop when I’m asleep. Scientists and Doctors do not know the reason. There is currently no cure and limited treatments. I’m not a candidate for DBS (more on that later). Dystonia is a close relative to Parkinson’s, yet it seems no one has heard of this rare condition. I’m here to change that. My main goal is to help others and their loved ones through the challanging journey of having chronic conditions.
I’m really exited to announce that three of my articles will be published in the next month or so! The article topics differ, but all relate to my goal. As they are posted, I will post them here. Two of them will be posted by The Mighty. One will be published by the Dystonia Medical Research Foundation in the Dystonia Dialogue.
So, please post any questions you might have about Dystonia or suggestions of topics you’d like me to explore.
P.S.-Look forward to me going into depth about my conditions. I’m just wanting to write my first post!